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Our Mission...
The mission of the International Osteopetrosis Association is to support research that is
committed to finding treatments and cures for disorders in bone metabolism and to assist
those who are afflicted with such disorders with emphasis on those who have autosomal dominant osteopetrosis.
We are committed to funding medical and scientific research, educational programs and
creating forums for the exchange of ideas in order to benefit those with such disorders.
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2 out of 3 of these boys have Osteopetrosis.
Can you guess which ones?
ANSWER: Go to link, FAMILY STORIES |
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What is osteopetrosis?
Marble bone disease/Albers-Schonberg disease, is an extremely rare inherited disorder
whereby the bones harden, becoming denser. Normally, bone growth is a balance between osteoblasts (cells
that create bone tissue) and osteoclasts (cells that destroy bone tissue).
READ MORE... |
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Kaleb's Web Page.
Kaleb suffers from the adult dominant form of osteopetrosis.
This page will keep his family and friends updated on his status.
READ MORE...
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Living with Osteopetrosis (ADO) - From a Family's Perspective
This blog will be used to describe the trials, tribulations, ups and downs, sadness and happiness that we experience relating to Osteopetrosis. Maintained by Kaleb's mom, Lori.
READ MORE...
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International
Osteopetrosis
Association (IOA) |
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P.O. Box 261, Fishers, IN 46038
Phone: 317-773-6786
Fax: 317-773-6831
Toll Free: (866) 220-2751
Email: Ashley Gettinger
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The 1st Annual
IOA Halloween Gala
Was Held on October 26th
at The Forum at Fishers
Thank you to EVERYONE who contributed to this event.
Amount raised from the event will be available soon.
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Request for
Research Proposals |
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Download RFP: Independent Investigator Award
The International Osteopetrosis Association (IOA) invites applications from independent
investigators for grants of up to $50,000 per year for basic or clinical research related to osteopetrosis,
with special emphasis on the autosomal dominant form of the disease.
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Download RFP: Trainee Award
IOA is accepting applications from researchers for 1- and 2-year grants for up
to $25,000 per year for basic or clinical research related to osteopetrosis, with special emphasis on the ADO form.
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Visit the links below to find more information about osteopetrosis
(not all experience, views or data are the same as those of the IOA)
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Contributions:
Donation Form
Contributions will go towards research designed to find the treatments and an eventual cure for
osteopetrosis and other related bone mineralization disorders.
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The International Osteopetrosis Association is a not-for-profit organization recognized as tax-exempt under Internal Revenue Code section 501(c)(3). 